Living with a New Reality

Rae loved traveling overseas, especially throughout Europe, for her marketing job, but the supposedly clumsy missteps and falling increased.  She was in Spain, fell and broke her leg, and had to return to Seattle.  Rae healed and returned to Europe, when she fell again and broke her wrist.  Suspecting something was seriously wrong, in late 1997 her doctor ordered brain magnetic resonance imaging (MRI) scans. Doug and Rae spent little time worrying about the tests because in December 1997 they moved into their newly purchased two-story home  — a house with stairs.  She felt a little tired, but blamed the frenetic activities of unpacking and celebrating Christmas. Then one day she realized her legs would not move.  Doug vividly remembers when they received the unwelcomed diagnosis—Multipe Sclerosis.  The date was New Year's Eve, 1997, and the New Year brought swirling and life-altering changes to the Bower family's lives. Like so many others diagnosed with a condition, the first thing on the list was…

0 Comments

NEW ZEALAND ACCESSIBILITY CHAMPION

Few able-bodied persons realize how many barriers exist when trying to daily navigate public places, especially when the transportation mode is a wheelchair.  Rae Bower encountered such barriers while living in New Zealand.  Without curb cuts, sidewalks become a wall to a wheelchair user.  Without wider doors into a public building or business, entry is barred. Without elevators, mobility challenged people must stay on the first floor. Even without automatic door openers, entrance depends on someone being around to help, but many times there is no one around.  Especially important, without larger bathroom stalls, heeding nature calls become a real problem.  Put all those barriers together and exclusiveness, isolation, and loneliness can become the norm for a person with a disability. This is the new reality Rae faced, but what to do about it?  She easily could have stayed cooped up in her newly built accessible New Zealand home.  This world traveler, though, wanted to continue living her life independently, even though now…

0 Comments

One Person Can Make a Difference!

Heroes inspired and fascinated me since I was a very young girl.  A hero, according to the Oxford English Dictionary, is a “man (or for me, also a woman) “who exhibits extraordinary bravery, firmness, fortitude, or greatness of soul; a man (or woman) admired and venerated for achievements and noble qualities.” Living in a small farm community, heroes surrounded me.  These heroes bore little resemblance to the sports figures or celebrities that many young people admire today.  No, these were the quiet heroes who endured some hardship, disaster, disability, or tragedy with an unyielding courage and grace while enduring their pain or adversity. My parents constantly talked about our local heroes:  Parents of children who died tragically; a farmer hurt in an accident, but continued to farm in spite of the disability; a husband lovingly caring for his wife with multiple sclerosis; a wife raising her seven children after her husband died suddenly; a farmer’s family who suffered because of economic disasters, such…

16 Comments

Here a Doctor, There a Doctor, But How to Find the Best Doctor?

One of the best lessons Mom taught me was always go to the experts for medical treatment.  In the early morning of December 10, 1949, when nearly six months old, I became feverish and howled with pain, especially when Mom touched my right leg.  She intuitively knew it was polio, even though it was early winter when the virus seldom struck.  Living on a farm in Pewamo, Michigan, a very small village in the center of the state where the cows outnumbered the inhabitants, there were no doctors. One of the best lessons Mom taught me was always go to the experts for medical treatment.  In the early morning of December 10, 1949, when nearly six months old, I became feverish and howled with pain, especially when Mom touched my right leg.  She intuitively knew it was polio, even though it was early winter when the virus seldom struck. There were no doctors in our small village of Pewamo, Michigan, located in…

1 Comment
Read more about the article BLESSED BE THE CAREGIVERS  — ESPECIALLY MY MOM
Mary Ann Cook Wood

BLESSED BE THE CAREGIVERS — ESPECIALLY MY MOM

Most persons with a disability or facing a challenge describe the details from their own perspective.  In my case, I was too young to remember the night the polio virus unleashed its virulent wrath.  My mom, Mary Ann Wood, vividly remembered that night her entire life. The polio virus hit hardest during summer months, so Mom tried to keep her precious children—Patricia, Bill, Fred, and Kathy—close to home, on the farm located in mid-Michigan.  From 1940 to 1948, there were 132,411 reported polio cases, according to the U.S. Public Health Service..  In 1949, the daily news headlined the spiraling epidemic that eventually claimed 42,033 polio victims, the largest number ever recorded.  Mom so feared the virus that she bought polio insurance during that summer. I was born on June 18, 1949.  Mom kept me inside and away from crowds that summer.  Autumn blessedly arrived and the family was safe, so thought Mom.  However, on the wintry morning of December 10, 1949—almost six months…

3 Comments

Why This Title? Why This Blog?

Why This Title? The title came about like so many great ideas—at a favorite restaurant.  The credit belongs entirely to Dave Bulkowski, Executive Director of Disability Advocates of Kent County, Michigan.  As board president at the time, Dave and I regularly met to discuss board business, issues about disability advocacy and future trends.  I distinctly remember the booth where we ate.  Dave faced the kitchen and I faced the tables, the entrance, and the huge picture window.  I love people-watching. Since both of us have exploring minds, our conversations always veered off topic.  This particular time, we spoke about difficulties with some acquaintances. Then Dave calmly stated in a nonchalant voice, “You know, I’m not O.K., you’re not O.K., but that’s O.K.”  I laughed, because he was so right.  Each person has habits, hobbies, characteristics, or passions that are so often annoying and unpleasant.  We humans then might complain about that person.  Of course, each one of us tends to believe that…

5 Comments